An open letter to myself

A wise friend of mine I called when feeling low gave me some sage advise to write a letter to myself. I decided to share it. To share that rawness of what I needed to hear and what others may need to tell themselves to sooth their soul when it needs you to love every piece of it. When facing hurdles or struggles write a letter to yourself to remind yourself you are enough.

To me

You are enough, you are unique, you are creative, you are special, you deserve to be loved and that starts with loving yourself. You are normally bubbly and open, kind and caring. You let people in with the best hopes that they will return that openess. DO not give up on yourself or others just because some dont meet those expectations you set yourself. Dont let the pain of taking a chance and being burned close you off to other beautiful things in fear of getting hurt. You deserve love do not let the hurt win.

You are beautiful. What you see when you look in the mirror the imperfections and the health worries that weigh on you daily is not what others see. Listen to those around you when your inner dialogue is not so kind. The health worries and upcoming surgeries that make you feel ugly, insecure and worried that people will be disgusted with how you look. In these time’s of lows look through others eyes. They see big blue eyes that light up when you are happy or passionately sharing stories about the things you love. They hear a laugh that is contagious and makes them want to know more. They see you for all that you are and are not focused on the things you have zeroed in on and tear yourself up over. They see a daughter,a mother, a friend, a person that brings joy to them even in your darkest moments. They choose to be in your life when others walk away. DO not focus on the ones that walk away focus on the ones that stay. The ones that want you to succeed, to lift you up, to soar with you and climb into the cave of darkness when things get overwhelming. Not to pull you out but to sit and support you until you are ready to emerge stronger than before as you are ever evolving.

You are surrounded by love even in times you do not love yourself. You are not hard to love. You are loving, passionate, caring and kind. You want to make a difference to people, you want to inspire. So I choose me, to love myself, to inspire myself to push through on those days I feel stuck in quicksand. Listen when they tell you how strong you are when you face mountains everyday of being a special needs parent. The daily challenges of life. The fear of being stuck in the motions and lose of self. You may feel weak and it may get to you, but where you see weakness those around you see strength, they see someone facing giant hurdles with grace and humbleness. To come out the other side learning lessons and being stronger, becoming more than you were before. Remember no matter the hurdle even if it takes a while you reemerge like a blazing phoenix burning for life. When in the ash of the problems you face you will re emerge.

You are enough and deserve love, happiness, respect, safety ,security ,a positive future. Its ok to feel sad and low sometimes without those dark days there would be no balance and joy. Love yourself so you shine bright and light up those around you and remember there is always people that care no matter what struggles you face. You are loved, you are enough.

Peel Zoo – fun for the whole family.

School holidays and weekends are always great for trying new experiences. We ventured out to Peel Zoo in Pinjarra which was about 30 minutes from where we live.

The staff were very friendly when we got there giving us a map and telling us about the day’s free activities they had on that day. They accept the NDS companion card so parents like me who have a special needs child and need an extra person, the extra person is covered for free on the companion card.

As you walk in you see the ferrets and several tanks on display with different reptiles. The front area when you walk in also has tables for public use to have your lunch or a rest.

As you walk round there are several areas you can go into and see the animals up close. We went and fed the kangaroos. Cuddled an alpaca or two. The dears, sheep and goats were pretty friendly too. The walk in Avery was a huge hit with the kids but I wasn’t to comfortable with the birds landing on me haha.

There are free activities held throughout the day. Abi’s favorite was getting to hold a snake. The staff member seen how much Abi loved holding the snake and when the line died down invited her to hold the snake again which made her day.

After exploring and seeing the animals we went for a short walk to the restaurant across the bridge and sat down and enjoyed a meal with the kids. The setting was beautiful with a big bridge and beautiful grassed area the kids loved exploring. It was a great way to end the day’s adventure.

We will be going back again for sure as it was a huge hit with everyone. Best of all I discovered on the website they do annual passes.

So when visiting Mandurah/Perth take a trip out the the friendly Peel zoo for some great animal encounters everyone will enjoy.

http://www.peelzoo.com.au

World Autism Awareness Day 2019

Today is world autism awareness day. A day to raise awareness and celebrate the awesomeness of people like my daughter Abigail who have autism. One thing I won’t be sharing is the blue puzzle piece. The puzzle piece and light it up blue were started by a company called Autism speaks. They started out wanting to “cure” autism or find a way to eradicate it by finding it in utero. They also originally claimed Autism was linked with vaccines which has been disproven time and time again there is no link. Autism isn’t something that needs cured. People with Autism aren’t a missing puzzle piece. It is a spectrum disorder they are all wonderfully unique in their own way.

(Link to article about autism speaks and why the autism community do not support this organization – https://theaspergian.com/2019/03/29/autism-speaks-just-no/ )

My daughter Abi (diagnoses ASD 1-2) is amazing I love her quirks ,her cheekiness everything that makes her her. I hate when people ask about her quirks and I explain she has Autism. The ignorance that radiates off them when they say oh sorry she has autism. Why do people say sorry. She is amazing she loves to sing and dance and has no care who sees. She has things she’s advanced in like puzzles and drawing. She has her challenges also with speech/comprehension/safety. We all have our strengths and weaknesses that doesn’t mean we should be singled out or made to feel less. Autism isn’t less it’s strengths and weakness’s that fit in a particular spectrum.

I love seeing the world through Abi’s eyes and carefree spirit. She teaches me about life just as much as I teach her. So for world autism day I ask please don’t ever say sorry to someone about them having Autism or to a parent of a child with Autism. Autism isn’t something to be sorry about it is something to embrace, love and learn about. It is appreciating everyone’s uniqueness. So take the time today to learn about Autism so we can be supportive and informed as a community and embrace everyone within our community.

Mummy Mondays

I have a little tradition with another mum called Mummy Mondays. I met my friend through our children. We are both single mum’s of special needs children. We met through a school program the kids were both attending. We discovered we had a lot in common with being first time Mum’s who are also single Parents of a child with Autism.

It is hard having your first child friendship circles change people you thought were friends drop off as you move in different circles and you have to find your feet as you adjust to a new part of your identity as a mother. Just as you are finding your feet from becoming a first time mum you end up a single parent. The same thing happens again friends drop off while friendships adjust to the separation. Being a woman you have to deal with the stigma of being a single Mum. Believe me this is very much still a thing. People assume being a single mum you are hungry for another man. Assumptions are made. Oh she must have chased him away. Oh she must have cheated, She must be after everyones husbands now as she wont want to raise a child alone. Oh she has a different last name from her child bet she has lots of kids with different surnames. Oh she must get another man so she is take care of. So many assumptions I wont even list them all. All I wanted to do was focus on my daughter 3 years later and I am still single and not interested in dating properly as my focus is my child and working on my writing. I’m not someone who needs a partner its nice if the right person comes along but that’s just not my focus or a priority im happy on my own.

It takes a while to adjust to becoming a first time mum and becoming a single parent. Just as you think ok ive got this you start noticing that your child isn’t hitting milestones the way they should be and there is unusual behaviors. I had a feeling she had autistic traits and made sure I spoke to the child health nurse and pediatrician. She was first diagnosed with borderline global developmental delay before later being diagnosed with Autism.

My friend went down a similar path and we got talking at school and become friends. Neither of us really got time to go do fun things just as adults. We were lacking much needed self care time. The kids both go to the same day care on a monday for socialization. So we made Mondays a self-care day where we would go do something fun. We generally go to the shops and/or go to the movies maybe grab a bite to eat. Just time to hang out and get some much-needed time out. Self care is so important and being a mum of a special needs child with multiple specialists, NDIS and all the stuff that needs to be done at home to help early intervention self care is needed to ensure I don’t burnout . It is exhausting. Dont get me wrong I am extremely proud of my daughter and how far she’s come she amazes me everyday but, I need time out to re energize so I can be the best mum I can be for her. It is so important for everyone to have some self care time. You can’t help fill everyone’s cup if your cup is empty. So make some time to smell some flowers or better yet get yourself some flowers and enjoy them brightening up your house. Make some time for you can be as simple as taking 5 and doing some mindfulness or taking a day like we do and just have some fun. Laughter and socializing is good for the soul. Make some time for you.

Nadia – xoxo

Charity – we can all make a difference to someone in need.

Since I was a child I have always been brought up and believed that it is up to all of us to make a difference. Whether it’s donating what we don’t need or donating when we could. I remember my primary school doing a food drive for non perishable foods that was donated to those in need. Fun runs to raise money for charity’s. Ever since I was a child I have always had people around me trying to help others. My mum was always very generous to those around her and is the type to give her last dollar to someone else if they needed it more. I have always found it important to try help when I can. I’m in no way rich in fact I’m a single mother to a child with special needs. Rich or poor we can all make a difference if we want to.

As an adult I have worked for company’s that have worked alongside different charity’s, when I worked at Dale Alcock Homes we were able to volunteer at the Salvos at Christmas time during work hours to help pack food hampers and Christmas presents for family’s in need. It was encouraged as I found Dale to be a very kind and charitable man who encouraged his staff positively. That was 10 years ago and every Christmas time since then I have volunteered time and items around this time of year. Even when I lived in Margaret River I donated at the local community center packing hampers for families in need. The past few years it’s been harder as I have had my hands full with Abi so I like to donate items. This year I donated to the It’s in the bag Campaign by Share the Dignity Australia. I have also raised awareness and donations for CBM Australia whose mission is to improve the quality of life of people with disabilities in the poorest countries.

Now I’m a mother I want to set the best example to my daughter about compassion and helping others when we can. I think being involved in the community and charities is important in helping children become responsible kind adults.

This time of year is not always a happy one for a lot of people. So make a donation no matter how small and it could make a hard time more bearable and might even put a smile on a strangers face.

Here are some great charities I like to donate to and might give a good starting point for others that want to help.

https://www.sharethedignity.com.au/contact-share-dignity/

https://www.autism.org.au/donate/

Homepage

https://homelessconnect.volunteeringwa.org.au/donations

https://www.makeawish.org.au/?gclid=Cj0KCQiArqPgBRCRARIsAPwlHoXEWXvaO4w-dfP4ucwhv0Sk-_T3uGEN2XXZJeoc8EPAS4m3xzMfSlwaAkEPEALw_wcB

Happy festive season

Nadia – xoxo